Data Summary Requests

TRiNDS ( is the Coordinating Center for CINRG and manages requests for CINRG data summaries. We welcome requests to further contribute towards advancing research and impacting the lives of patients and families with neuromuscular and rare diseases.

The requests are restricted to scientists, academic centers, and pharmaceutical companies with hypothesis driven questions leading to publications with CINRG collaboration. Requests are reviewed on a case-by-case and verified for overall feasibility before they can be fulfilled. For assistance in developing hypothesis driven questions please review all of our existing CINRG publications at: The extensive list of CINRG publications is in chronological order with our most recent publications at the top.

The process for submitting a data summary request is highlighted below: