Community Based Outcome Measures in Boys with DMD

Participants are being invited to take part in this parallel research study if they are enrolled in VBP15 2b clinical trial for boys with Duchenne Muscular Dystrophy (DMD). This study requests boys enrolled in VBP 15 wear the ActiGraph GT9x, a wrist-worn portable fitness tracking device, to objectively explore sleep factors and daily physical activity throughout the clinical trial. Patient reported outcomes regarding sleep and daily participation will also be collected. To learn more about the study eligibility please contact Dr. Roxanna Bendixen (bendixen@pitt.edu).